Sunday, October 27, 2013

Are you FREAKING KIDDING ME!?!?!?!?!?

At Eliana's 4 month appointment, everything was going well, or so I thought...

I love our pediatric practice. As a WHOLE they are wonderful. They can calm me down quickly and answer my questions. When the person I am talking to doesn't know the answer, she goes and finds it. I like them. Matt came with us to the first few appointments and picked out a Dr. that he felt comfortable with. She is nice, and very young. Not like Doogie Howser level young, but sometimes she feels like that.

Anyway. Back to our little story. Something wasn't right. Doc wasn't talking. She was just kinda doing the same thing over and over again. And then she said she would be right back with another Doc. She has done this before, and I am okay with it. She wants to make sure the information she is giving us is correct. I appreciate it. Doc #2 came in and did the same things Doogie Howser did. Then they both left. Eliana and I started to make fun of them. And have fun - like we do.

Doc came back in and said that Doc #2 confirmed her suspisicions. There is a SMALL chance that Eliana might have Down Syndrome.



JK. I didn't actually freak out. I was more shocked than anything else. I mean, we had the test when I was pregnant to check for Downs, even though I didn't care at all about the outcome, just wanted to see my baby again. I never in a million years would have terminated the pregnancy if she had Down Syndrome. I just wanted another fancy sonogram. I wanted to see her beautiful face.

So I started asking questions. Doc told me that it was because of a few things.
1 - Eliana wasn't standing up assisted. When you hold her up she doesn't put her feet down.
2 - Her tongue is always sticking out.
3 - Her muscle definition is loose.

So then I responded.
1 - Of course she isn't standing up, no one told me she was supposed to. SO why would I make her.
2 - I am the runt of my family when it comes to tongue length, and I can touch my nose. My brother's tongue was out until he was much older.
3 - SHE IS 4 MONTHS OLD! Of course her muscle definition is loose. She doesn't go to the GYM! what was I thinking!!!

Doc explained that had our positions been switched, she would want to know that there is a small chance that her child might be on the MOSAIC for Down Syndrome. Mosaic? Is that like the spectrum for Autism? Nope, its a mosaic. IDK.

She told me that there was a number I could call and they would come to the house and do a full physical, emotional, and mental exam to confirm. Or I could do blood work. On a FOUR month old. Right. So I asked the Doc, "Does she look like she has Downs?" "No."

The whole reason Doc told me this was "in case" she does have Downs. She didn't want me to be shocked or surprised if it showed up on her blood work later on.

So I went home. And told Matt. He wanted to call and make appointments and get her checked out, etc. I said sure. I will make the call. And the next day, Eliana started putting her feet down and standing up. And we never did anything about it.

Fast forward 2 months. To her 6 month appointment. I took her alone again, and we purposely saw the same Doc as before. We went through the motions and all the regular stuff. Then at the end of the appointment Doc said "You remember all that stuff about the possibility of Down Syndrome? Yea, I don't think there is any chance she has it." My response? "I know."

Every friend and family member I told this story to was appalled by Doc's behavior. And rightfully so. Had this been any other parent, especially a FIRST TIME PARENT, everything about how they raise that child would have changed. Most parents would start looking at this child as special or disabled. Doc was lucky it was me in the room that day. And she is lucky I don't have an interest in suing her. She could have completely derailed our relationship and damaged our family. Just in case.

Never once did I suspect that Doc knew what she was talking about. Never once did I suspect that my daughter might have Down Syndrome. It was not in the realm of possibility. So no.

In fact, I was more upset this past week by how much her butt her because of her diarrhea. Which was MY FAULT because I fed her carrots - and she is clearly still allergic.

Moral of this story? I am going to see Doc once more at 9 months. And I am going to talk to her about her decision to say "might" and "possibility" because any other parent would have freaked out. And then, I think we are going to switch Docs in the practice. No worries, there are 8 others to pick from and I have liked almost all of them.

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